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The art of
staying out
July 21, 2006
A mental health service user peer-support project in Dewsbury
claims to have led to its members spending 89 per cent less time
as hospital inpatients. How does it do it? Adam
James finds
out.
.....
In
a farmer’s field in the Yorkshire Dales there is one caravan
not used by holidaymakers but by people 50 miles away in Dewsbury
who have severe mental health problems. The caravan is their refuge,
a place to seek sanctuary.
While
the £2,000 respite caravan is modest, it’s the only
service of its kind in Britain, and exemplifies the inventiveness
of a Dewsbury project which claims remarkable success in preventing
“revolving door patients” from being re-admitted to
psychiatric hospital.
The
Staying Out project, run by North Kirklees Mind, says it has led
to an 89 per cent reduction in the average number of days its “members”
spend as hospital inpatients. It’s a statistic that impressed
the National Institute of Mental Health in England which last year
awarded Staying Out an award for “promoting independence for
people with severe and enduring mental health problems”. And
last month Staying Out hosted its first conference, in Dewsbury,
to disseminate its working model.
Set
up in 1999, Staying Out runs three groups of eight members. The
groups, which meet for two hours every week and are facilitated
by one staff member, blend social informality with intensive self-help.
Every member must sign a contract detailing what achievements they
feel they must reach to help prevent hospital re-admission and,
most importantly, committing them to attend every meeting, even
if feeling mentally unwell. A big ask for vulnerable people, perhaps.
But, group facilitator Peter Brown emphasises: “The groups
are for those people who are ready to make that commitment to [support
each other] stay out of hospital. If someone does not attend it’s
up to the group to decide what to do. It might be a matter of ringing
them or writing them a letter.” Moreover, while Staying Out
takes referrals from agencies, group members themselves decide whether
or not to accept new members.
In
January a Mental Health Act Commission report stated that more than
half of psychiatric inpatient wards were understaffed with unpleasant,
untherapeutic, environments. No surprise, then, that patients are
keen to avoid admittance. Indeed, ‘staying out’ is a
mantra for the three groups, simply called the Monday, Tuesday and
Wednesday groups, reflecting the days on which they run. And,with
the oldest group having run for seven years, each has drawn up its
own rules to achieve this goal.
One
group, for example, has published a booklet specifying what each
member asks from other members should they feel suicidal, have urges
to self harm or are acutely paranoid or deluded. This could be anything
from a daily supportive visit or telephone call from another member,
to ringing a social worker or GP, to just sitting with them quietly
listening. And, as group members have long histories of psychiatric
admissions, crises are frequent. Supporting members through such
periods can be taxing, but the groups take this role on. Importantly,
no-one has any duty to contact healthcare authorities when a fellow
member is in crisis. “We do not have statutory responsibility.
We are working to a model of self-responsibility,” says Brown.
Such is the commitment to providing a genuine alternative to hospital
that members all share each others telephone numbers. Many clinicians
would shudder at such a thing.
But
the group sessions are not all gruelling. “We might get a
run of eight or ten weeks when it is really hard and intensive,”
says project manager Cheryl Cook. “But after that it might
be more about the group doing something social – going out
for a movie or a meal.”
Each
group also has a £2,000 pot of “creative resourcing”
funds. If a member believes an activity – from driving lessons,
hair-dresser training or private psychotherapy – will help
them stay out of hospital and improve their quality of life, then
they have to persuade other members this is the case. This was how
the idea of a respite caravan originated.
No
independent research has been carried out on Staying Out. But its
own research completed in 2003 is eye-catching. The year before
joining Staying Out, 17 members spent a total of 604 days as inpatients;
the year after joining it dropped by 89 per cent to 57 days. Staying
Out boasts that it provides its service at £2 per member per
day (equivalent to £730 per year), while just one overnight
stay at Dewsbury District Hospital’s psychiatric unit is £325,
says Staying Out. The project puts its success down to non-judgmental
and committed social support. “Their power lies in the fact
that that the groups are simply about witnessing,” is how
Brown puts it. “The most powerful thing is to be there and
sit with it [people’s distress] without turning away or necessarily
trying to make it better.”
Mother-of-two
Samantha Drain, who has been diagnosed with schizophrenia, first
joined a Staying Out group in 1999. While she has been re-admitted
twice since (in 2002 and 2003) she is adamant the group has prevented
not only further admissions but also stemmed strong suicidal impulses.
“The support and listening from people who have the same illness
makes so much difference,” she says. “It’s kept
me out of hospital. It’s kept me alive.”
Staying Out:
01924 466486.
* A shortened
version of this article appeared at guardian.co.uk
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