| Social
inequalities, madness and the system: where are we?
July
20, 2003
Mark
Bertram, occupational therapist and vocational service manager with
the South London and Maudsley NHS Trust (Lambeth), works in an area
of high deprivation.
Despite
the obstacles, he argues mental health service providers should
attend more to how such disadvantage effects people's lives.
Contact:
markbertram@mail.com
................
A prelude:
Reflections on Self-Praxis
I
work in mental health services in an area having the highest level
of violent street crime nationally, very high levels of socio-economic
deprivation, unemployment, drug abuse and 'psychiatric morbidity'.
It has been described, in the press and through graffiti, as a war
zone, ghetto and dumping ground.
To
use the same analogies, the people I meet appear to be living examples
of social inequality and the seriously wounded casualties. In my
experience, over 14 years, the people I work with tell stories about
their experience of distress that are entirely understandable in
the lived oppressive context of what has happened to them. The key
point is many 'have been done to or neglected' and have suffered
the impact of gross inequalities to the extent that they cannot
cope anymore. Many consistently describe struggling with extreme
emotional and social deprivation, abuse, traumas and a lack of educational
or vocational opportunity.
I
have learnt through my own experience of mental distress and living
in a therapeutic community that "the important thing is to
realise why people, feel that they are going mad, feel they cant
cope
usually with the suffering you're talking about- social
and/or personal invalidation" (Berke, 1974, p233).
My
own oppression that led to a period of self- destructive madness
emerged through the conditioned fixing of male gender identity and
imposed responsibilities. "As a boy I was not allowed to feel
scared
if I cried or broke down I was a sissy not a man. My
father was lost at sea when I was nine years old. I was informed
that
I was now the man of the house, had to be strong, keep my chin up
and look after the women
the forced denial of the experience
of grief was impossible for me to cope with" (Bertram, 2003).
What brought me through it was engaging with people who were able
to create safe conditions for me to tell my story so I could feel
heard. Genuine interest, tenderness and felt acceptance enabled
me to work through deeply rooted feelings of despair, loss and pain
to begin to get some sense of confidence and eventually commit myself
to a role.
As
a worker and service manager in vocational services the effects
of poverty are generally over looked in mental health services.
Helping people into employment does not receive the priority or
resources needed. Having been unemployed for a long time I have
described my experience "I felt deeply insecure, scared and
devalued" (Bertram, 2002). In the same article a user describes
theirs " I got angry then it hurt, I just ended up in a gutter
alone, no one respects or cares about you, its easier to just give
up, I did" (p8). Many people from black and ethnic minority
groups state consistently to me that they are discriminated against
by employers and the only jobs they could get were low paid and
menial. A Black user once said to me that he was told he was a 'McDonalds
dodger'.
Describing
the affects of poverty Beresford (2001) states "In terms of
loss of choice and hope, sense of fear and worthlessness and sheer
wretchedness I would not wish it on anyone
" (p2). My
experience of working with people reflects exactly what Williams
(1999) states, "There can be no doubt that social inequalities
are a major determinant of the mental health of people who belong
to oppressed social groups".
Most
of the work my colleagues engage in is focused on trying to help
people clobbered and disabled by the miserable effects of poverty
and deprivation within a shaming benefits system and discriminating
society.
.............
Introduction
Here I am concerned with the nature, scope and impact of social
inequalities that impinge on the positioning of marginalized groups
in western society. The argument is structured into three parts:
the context briefly describes how the difficulties that bring people
into contact with mental health services are differentially perceived
between medical and social variables of analysis. I review and analyse
some key evidence associated with two important lynchpins of social
inequality in the form of gender and racism. The discourse and impact
of social inequalities is then assessed in relation to the implications
for service development and the dynamics resisting change.
Context
Currently, the difficulties that may bring social groupings into
contact with mental health services are multifaceted. Firstly, western
psychiatry locates and interprets human experiences, reactions and
problems of being in the world within individual minds and bodies,
social or extraneous factors are accepted, not as causes of mental
illness but "merely precipitants" (Fernando, 1995, p15).
Secondly, the contrasting argument is that the impact of disadvantage
through social inequalities is "causally linked to the despair,
distress and confusion that is named mental illness" (Williams
and Lindley, 1996, p3).
The
ambivalence for understanding the medical implications of social
inequalities on mental health then is: 'whether' peoples thinking
and actions- that psychiatry may define as symptoms of a disorder-
can be understood as "creative responses" to a range of
psychosocially intolerable oppression(s) and therefore transcending
medical science via the social construction of inequalities tied
to social variables of analysis (Williams, 1999, p31).
Indeed,
according to Williams and Watson (1988) the extensive evidence indicates
that social variables are inextricably linked: "social inequality
exists when an ascribed characteristic such as sex, race, ethnicity,
class and disability determines access to socially valued resources"
(p292). Consequently, it has been argued that the relationship between
social inequalities and its affect on mental health can be best
understood through examining the evidence of serious disadvantage
linked to inequitable access to resources, processes of subordination
and serious abuses of power (Williams, 1999, Williams and Scott,
2002).
Gender and
Mental Health
Gender, as a social construct, fixing of identity and life determining
characteristic influences significantly the symbolic, material and
unequal position that women are subjugated to globally (Bertram,
2003). For example, the World Health Organisation (W.H.O) report
extensive research where findings correlate rates of 'psychiatric
morbidity' with 'epidemiological' clusters directly linked to poverty,
social disadvantage and deprivation (Kleinman, 1998, W.H.O., 2002).
However,
some writers claim that despite three decades of research on gender
identity and a wide range of risk factors, none can fully explain
or single handedly account for gender differences in diagnosed 'mental
illness' (Nolen-Hokesma, 2001, Segal, 2001). In contrast, Prior
(1999) states it is now accepted that explanations must be located
within the social milieu, she cites Weisman (1991) "epidemiological
difference is not reducible to biological factors or methodological
artefact but can be traced instead to extrinsic features of the
social milieu and inequities with respect to cultural domains of
power and interest" (p279).
Access
to resources such as money, power and status are key indices of
inequality (Williams, 1999). Globally, women account for 70% of
those living in absolute poverty and generally people diagnosed
with 'mental illness' are economically poor and face more severe
life events (Ramon, 1996, United Nations Development Programme,
1997). Gendered inequity in the division of paid labour is reflected
through U.K. statistical evidence. On average women's gross income
is 49% of men's with 43% of women working part time (Office for
National statistics, 2002, Women and Equality Unit, 2001).
Women
also face chronic burdens associated with their assigned status
that places them at greater risk (W.H.O, 2001). The multiple role
demands usually feature an around the clock taken for granted care
function involving the responsibilities of being mothers, wives,
carers, cooks and cleaners for others (Paltiel, 1993).
It is the unending and devalued nature of these mainly unpaid tasks
that can lead to poor 'mental health' (Miles, 1988).
There
is extensive evidence that women are subjected to oppressive subordination
processes involving serious abuses of power mainly by men (W.H.O,
2001). For example, the high level of physical and sexual violence
(W.H.O, 2002). The most endemic form of violence against women in
developed or developing countries is domestic violence, global prevalence
ranges from 16%-59% (W.H.O., 1997). Sexual assault against females
in childhood or adulthood have also been identified as the most
likely trauma event resulting in post traumatic stress disorder
and admission to secure services in the U.K. (Darves-Bornoz, 1997,
Williams and Scott, 2002).
Many
feminist writers have also consistently argued that gender is strongly
embedded in the social construction, categorisation and control
of `mental illness` (Busfield, 1996, Prior, 1999). According to
Showalter (1987) "While the name of the symbolic female disorder
may change from one historical period to the next, the gender asymmetry
of the representational tradition remains constant" (p4). It
is claimed that psychiatry is a form of gender discrimination and
subordination process because of the way women's experiences of
social inequality have been medicalised (Russell, 1995). Women are
more likely than men to receive electro-convulsive therapy even
where the evidence suggests that the main conditions they are 'diagnosed
with' have strong social origins (Busfield, 1996).
Therefore,
being female may be a risk to women's mental health because apart
from "trauma, exploitation and discrimination" the affects
of inequalities are hidden and mediated by labelling women mad (Williams,
1999, p36, Burstow, 1992).
Consequently,
the evidence has prompted strong arguments that it is "both
more accurate and useful to conceptualise women's mental health
problems as responses to-and sometimes as creative ways of coping
with- damaging experiences that are rooted in their lived experiences
of inequality and abuse of power" (Williams and Scott, 2002,
p6).
The Problematic
of Racism
"Difference on the basis of skin colour routinely attracts
discriminatory behaviour, racism is rife" (Trivedi, 2002, p72).
The health of Black and ethnic minority groups forms part of a wide
social exclusion agenda that covers inequality indices such as unemployment,
education, poverty and poor housing (Bahl, 1999). The impact of
inequalities stemming from sources of racism can be identified through
exploring the psychological, material and social consequences (Patel
and Fatimilehin, 1999).
According
to McKenzie and Murray (1999) "One can only speculate on which
social factors are involved" (p57). However, in contrast, the
devastating psychological consequences of racism through the processes
of oppression and forced assimilation have been described in depth,
"Feelings of confusion, vulnerability, powerlessness and hopelessness
with subsequent emotional and psychological distress often accompanied
by self destructive feelings
may lead us (voluntarily or involuntarily)
to mental health professionals (Trivedi, 2002, p76).
Material
consequences of racial disadvantage through unemployment, deprivation
and the consequent financial strain also have dangerous implications
for the functioning and stability of families in whole ethnic communities
(Patel and Fatimilehin, 1999). Social inequalities have been found
to determine the security of attachment for children generally with
social advantage being associated with secure attachment (Early
Child Care Research Network, 1997).
The
structured nature of socio-economic inequalities and the implications
for subject positioning are further described by Davey (1999) "The
absence of adequate income and occupation are strategic aspects
of a general lifestyle of systematised emotional, relationship and
experiential deprivation. The mental health problems are a result
of this" (p267).
For
example, despite the Race Relations Act (1976), racial discrimination
in employment practices has a long history and recent studies highlight
this continuing: 15% of white men where unemployed compared to 31%
of Caribbean's and 42% of Bangladeshis (Modood, 1997). Women from
all ethnic minority groups are the least likely to be in employment
(Commission for Racial Equality, 1997). Generally, the research
data have also demonstrated that unemployment results in increased
rates of depression, anxiety and admission rates with evidence of
a link to increased risk of suicide (Moser et al, 1987, Warner,
1994, Lewis and Sloggett, 1998).
The
social impact of material deprivation is also linked to a reduction
in social, economic and political power that can result in the marginalisation
of whole communities (Patel and Fatimilehin, 1999). These authors
cite Fernando (1984) to make a further point that racism toward
black and ethnic minority communities is implicated in material,
social and emotional suffering and the subjective experience of
powerlessness, limited control over social realities and lack of
opportunity may combine to lead to 'depression'.
There
is also compelling research evidence that Black and African-Caribbean
people encounter a range of difficulties in the way they access
mental health services. For example, they are more likely to be
sectioned with police involvement, forcibly medicated with high
doses and 3-6 times more likely than white people to receive a diagnosis
of schizophrenia (Bahl, 1999, Sainsbury's centre for Mental Health,
2002).
Despite a national growth in the user movement and policy exhortations
for users to be involved at all levels of provision, Black users
voices are "not heard within the mental health system"
(Patel and Fatimilehin, 1999, p67, Sassoon and Lindow, 1995).
Implications
for service development
The evidence presented here highlights some of the sources and impact
of inequalities on people's lives that may bring them into contact
with services. However, there is evidence that most mental health
services do not meet the needs of women or Black/Ethnic minorities
because they replicate the discrimination, fear, oppression and
abuse reflected in society (Williams and Scott, 2002, Sainsburys
Centre for Mental Health, 2002).
This
can happen through Institutional racism and subordination processes
leading to what Trivedi (2002) called the 'spiral of oppression'.
This author argues, through personal experience, "Societies
response to
distress is treat it within mental health services
in a system of medical and social care that rather than understanding
and challenging oppressions that give rise to mental distress, reinforce
them with their own oppressive attitudes and practices" (p77).
Therefore, unless social inequalities, as a cause of mental distress,
are taken seriously and made explicit, mental health services will
be damaging to users and a waste of public money (Williams, 1999).
Services
would require radical changes to even begin to meet the needs of
Black and Ethnic minority groups and dispel the stigma and fear
associated with mental health provision. For example, dealing with
issues of empowerment, user involvement in determining need and
quality, developing community based preventative services and alternative
non-eurocentric models (Patel and Fatimilehin, 1999).
The
implication and challenge for services then is to recognise the
material, psychological and social consequences of social inequalities
on women's and men's lives and cultivate a commitment to changing
the nature of provision. For example, by mainstreaming gender "as
part of the automatic consideration of inequality issues in policy
and practice development" (Williams and Scott, 2002, p10).
These authors highlight development in the areas of policy, practice,
training and user participation. They also propose specific service
components based on evidence and service user views. In summary,
these include: psychological and physical safety, users influencing
provision and development, service cultures that recognise the consequences
of inequalities, staff who are well informed about the social origins
of distress and empowered staff mindful of relational power abuse
and who are well trained and supervised (p12).
A
fundamental implication for mental health workers during assessment
and intervention is that they need to really listen, understand
and respond to what users are saying about their condition as often
alienation, deprivation, lack of hope and income can create responses
that psychiatrists call symptoms (Austin, 1999). Nationally rates
of unemployment for people diagnosed with serious 'mental illness'
have been reported as ranging from 66% to 100% (O`Flynn, 2001).
This shocking level of social exclusion also requires huge investment
with vocational developments best guided by the experiential insights
of service users (Bertram, 2002).
Dynamics
resisting change
The development of disciplinary structures and techniques as a modality
for the exercise of power and subordination processes that put people
where society feels they belong is well documented (Foucault, 1977,
Powell, 2002). Mainstream mental health services are reluctant to
identify social inequalities as a determinant of mental health because
"promoting equality inevitably involves entering into conflict
with the dominant social arrangements that help to maintain existing
power relations" (Williams, 1999, p42).
The
status, income and power that some health care professional roles
bring in comparison to service users income and status are also
highly defended (Linnett, 2002). Psychodynamic defences by staff
have been identified and include "serious and worrying splits
which often lead to unhelpful or damaging projections e.g. demonising
others" (Heginbotham, 1999, p254).
Constraints to change also include the increasing power of the illness
model and resistance from professionals to embrace new ways of working
based on insights gained from personal experiences of mental distress
(Pilgrim and Waldron. 1998, Barnes and Bowl, 2001).
Williams
and Lindley (1996) have also highlighted that changing mental health
services poses very real difficulties that "are rooted in the
structural inequalities in our society and in the gross inequalities
between those who provide and those who use services" (p11).
They argue that it is unrealistic to expect people with least power
(service users) to change services and we must establish "better
ways of struggling for change together" while acknowledging
the effects of race, gender, class, age and sexuality on mental
health (p11).
Conclusion
Brundtland (2000) the Director General of the W.H.O. has stated
"mental health depends on some measure of social justice"
(p4). However, the evidence presented here indicates there is little
of that around. Structured social inequalities linked to inadequate
access to resources, subordination process and serious abuses of
power are implicated directly with the difficulties that bring people
into mental health services.
Trivedi,
(2002) also confirms the central problem with how these difficulties
are perceived and treated, "Perhaps now is the time really
to acknowledge the social causes of much mental illness and tackle
them, rather than leaving the largely biological discipline of psychiatry
to deal with the casualties of social inequalities" (p82).
At the heart of inequality within mental health services is the
fact that professionals still define and evaluate quality and make
decisions about the treatment that affects people's lives deeply.
According to Keating (2002) the challenge facing services "lies
in recognizing the relevance of ethnic [and gender] identity in
relation to other determinants of need and thus determining appropriate
services".
There
are increasing calls for distress to be understood at the lived
site of struggle rather than located as individualised symptoms
outside of the wider socio-political context (Bracken, 2002).
However,
the ongoing stratification and division of society that leads to
modernised poverty and inequality prompted Illich (1978) to describe
the impact that has not changed, " This new impotence is so
deeply experienced
it deprives those affected by it of their
freedom and power to act autonomously
mutilated by their reliance"
(p8).
The
power holders of our world keep pushing the consumerist vision with
the promise of reaching, someday, a global market and democratic
utopia but this ideology also can result in a "killing machine"
(O'Sullivan, 1999). The peacetime damage comes from the structured
nature of social inequalities it leaves in its wake with mental
health services bursting at the seams trying to cope with the casualties.
If this is not taken very seriously, made explicit and addressed
at the micro and macro levels of society and service provision,
the evidence suggests "Innovation without change will continue"
and the suffering will get worse (Brandon, 1991, p172).
Acknowledgements:
Thanks to Peter Linnett, Jennie Williams, Frank Keating and Jason
Powell for various forms of inspiration.
References:
Austin,
T. (1999) The role of education in the lives of people with mental
health difficulties. In C. Newnes, G. Holmes and C. Dunn (ed.),
This is Madness: A Critical Look at Psychiatry and the Future of
Mental Health Services. Ross-on-Wye: PCCS Books.
Bahl,
V. (1999) Mental Illness a national perspective. In D. Bhugra and
V. Bahl (Eds.), Ethnicity: An Agenda for Mental Health. London:
Department of Health.
Berke,
J. (1979) I Haven`t Had to Go Mad Here: The psychotics journey from
dependence to autonomy. Harmondsworth: Penguin.
Bertram,
M. (2003) Women and Mental Health: A Brief Global Analysis. International
Journal of Language, Society and Culture. 12.
Bertram,
M. (2002) The Problem with Employment-Too much, The Wrong Sort,
or None at All? Life in the Day. Pavillion Press.
Bertram,
M. (2002) Employment-Too much, The Wrong Sort, or None at All? (Unedited
Ed) Lambeth Mind News, 16, 5.
Bracken,
P. (2002) Depression, Psychiatry and the use of E.C.T. Lambeth Mind
News, 13, 10-13.
Brandon,
D. (1991) Innovation without Change: Consumer Power in Psychiatric
Services. London: MacMillan.
Brundtland,
G. (2000) Mental Health in the 21st Century. Bulletin of the World
Health Organisation, 78, 4, 411.
Burstow,
B. (1992) Radical Feminist Therapy: Working in the Context of Violence.
London: Sage.
Busfield,
J. (1996) Men, Women and Madness: Understanding Gender and Mental
Disorder. London, MacMillian Press.
Commission
for Racial Equality (1997) Ethnic Minority Women. London: CRE.
Darves-Bornoz,
J.M. (1997) Rape related psychotraumatic syndromes. European Journal
of Obstetrics, Gynaecology and Reproductive Biology. 71,1, 59-65.
Also available at: www.jhuccp.org/pr/111/111chap5_3.stm
Fernando,
S. (1984) Racism as a cause of depression. International Journal
of Social Psychiatry, 30, 40-49.
Fernando,
S. (1995) Mental Health in a Multi-ethnic Society. London, Routledge.
Foucault,
M. (1977) Discipline and Punish: The Birth of The Prison. Allen
Lane.
Heginbotham,
C. (1999) The psychodynamics of mental health care. Journal of Mental
Health, 8, 3, 253-260.
Illich,
I. (1978) The Right To Useful Unemployment and its professional
enemies. London: Marion Boyars.
Kleinman,
A. (1997) The Clustering of Mental and Social Health Problems: Importance
for Policies and Programs. World Mental Health Project. USA: Harvard
Medical School.
Lewis,
G. and Sloggett, A. (1998) Suicide, deprivation and unemployment:
record linkage study. British Medical Journal, 317, 1283-1286.
Linnett,
P. (2002) Letter to a Mental Health Care Professional. Asylum: Magazine
for Democratic Psychiatry, 13, 2 18-20.
McKenzie,
K. and Murray, R. (1999) Risk factors for psychosis in the UK African-Caribbean
population. In D. Bhugra and V. Bahl (Eds.), Ethnicity: An Agenda
for Mental Health. London: Department of Health.
Modood,
T. (1997) Employment. In T. Modood, R. Berthhoud, J. Lakey, J. Nazroo,
P. Smith, S. Virdee and S. Beishon (Eds.), Ethnic Minorities in
Britain: Diversity and Disadvantage. London: Policy Studies Institute.
Nolen-Hoeksema,
S. (2001) Gender Differences in Depression. Current Directions in
Psychological Science, American Psychological Society. 173-176.
Office
for National Statistics. (2002) Social Trends 32. London: Stationary
Office.
O`Flynn,
D. (2001) Approaching employment: Mental health, work projects and
the Care Programme Approach. Psychiatric Bulletin, 25, 169-171.
O'Sullivan,
Edmund. (1999) Transformative Learning: a Vision of Education for
the 21st Century. Toronto and London: OISE/UT Press and Zed books.
Paltiel,
F.L. (1993) Women's Mental Health: A Global Perspective. In M. Koblinsky,
J. Timyan and J. Gay. The health of Women: A Global Perspective.
Boulder, Westview Press.
Patel,
N. and Fatimilehin, I. (1999) Racism and mental health. In C. Newnes,
G. Holmes and C. Dunn (ed.), This is Madness: A Critical Look at
Psychiatry and the Future of Mental Health Services. Ross-on-Wye:
PCCS Books.
Prior,
P. (1999) Gender and Mental Health. Basingstoke: Macmillan.
Ramon,
S. (1996) Mental Health in Europe. Mind Publications. London, MacMillan
Press.
Russell,
D. (1995) Women, Madness & Medicine. Cambridge, Polity Press.
Sainsbury`s
Centre for Mental health (2002) Breaking the Circles of Fear. London.
Sassoon,
M. and Lindow, V. (1995) Consulting and empowering Black mental
health system users. In S. Fernando (Ed.), Mental health in a multiethnic
society: a multidisciplinary handbook. London: Routledge
Showalter,
E. (1987) The Female Malady: Women Madness and English Culture,
1830-1980. London, Virago.
Trivedi,
P. (2002) Racism, Social Exclusion and Mental Health: A Black Users`
Perspective. In K. Bhui (ed.), Racism and Mental Health: Prejudice
and Suffering. London and Philadelphia: Jessica Kingsley.
United
Nations Development Programme (1997) Human Development Report. Link
Available at: http://www.undp.org
Wahidin,
A. and Powell, J. (2001) The loss of Aging Identity: Social theory,
old age and the power of special hospitals, Journal of Aging and
Identity, 6, 1, 31-49.
Warner,
R. (1994) Recovery from Schizophrenia: Psychiatry and Political
Economy (2nd edn). Oxford: Oxford University Press.
Williams,
J. and Watson, G. (1988) Sexual Inequality, family life and family
therapy. In E. Street and W. Dryden (Eds.), Family Therapy in Britain.
Milton Keynes: Open University Press.
Williams,
J. and Lindley, P. (1996) Working with Mental Health Service Users
to Change Mental Health Services. Journal of Community and Applied
Social Psychology, 6, 1-14.
Williams,
J. (1999) Social inequalities and mental health. In C. Newnes, G.
Holmes and C. Dunn (ed.), This is Madness: A Critical Look at Psychiatry
and the Future of Mental Health Services. Ross-on-Wye: PCCS Books.
Williams,
J. and Scott, S. (2002) Service Responses to Women with Mental Health
Needs. The Mental Health Review, 7, 1, 6-14.
World
Health Organisation (2001) Department of Injuries and Violence Prevention
(V.I.P.). Violence against women information pack. 1-25. Available
at: www.who.int/violence_injury_pevention/vaw/infopack.htm
World
Health Organisation (2002) Mental Health: New Understanding, New
Hope. Geneva. Download available at: http://fb4d.com
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